医疗保健上升/下降: The Importance of the Patient Perspective

4.24.23

心电图’s radio show and podcast, 医疗保健上升/下降, offers unfiltered perspectives on what’s working in US healthcare and what’s not. Hosted by 心电图 principal Dr. 尼克·范·特海登, each episode features guest panelists who explore the upsides and downsides of healthcare in the US—and how to make the system work for everyone.

When I was a young doctor, I always volunteered to talk to the patient’s relatives and have the difficult discussions with them. It wasn’t fun, but I recognized the importance of it and the significance for the family.

当时, I thought I did a good job of communicating bad news—which, 澄清一下, often meant the death of a close relative. I believed I was compassionate, 支持, and adept at handling the family’s emotions and understanding what they were going through.

Nothing could be further from the truth, as I discovered when my own father died some years later. It was only going through that experience that made me realize how difficult it is to truly comprehend someone’s feelings unless you’ve had your own similar experience.

Over the last several years, I’ve heard a recurring theme of including patients’ voices and incorporating their opinions and perspectives into healthcare services. Despite all the talk, I haven’t seen much execution of this.

April is Testicular Cancer Awareness Month. Testicular cancer is the most common cancer in young men aged 20–35 years. The good news is that it’s highly treatable and has very good outcomes—if discovered and treated promptly.

史蒂夫·麦克米伦 is a principal with 心电图 Management Consultants, and he’s spent 10 years focusing on improving patient access. In the course of carrying out his regular personal screening, Steve discovered a lump in his testicle that led him on a cancer care journey—thankfully to a positive outcome, but not without some challenges that, 用病人的声音, could be smoothed out or avoided completely. He shares his experience on episode 72 of 医疗保健上升/下降. 以下是其中的一些节选.

诊断.

“In 2021, I was diagnosed with testicular cancer. 我发现了一个肿块, 去看云顶集团40011官网了, went to a specialist and oncologist, and had surgery all within five days. The surgery got rid of the cancer for the time being, and I was able to go back to work the next day. So it was almost as though nothing happened. Three months later, the cancer had spread into my lymph nodes. I was in chemo two weeks later. I went on a three month journey—not being able to work, 四轮化疗, 头发掉光了, and being in the hospital for a week with an infection. The good news is we’re about a year and a half [out from] that, and I’m cancer free and on the surveillance plan.”

小事积少成多.

“As a patient access consultant, I really appreciated the referral turnaround time and how quickly I was able to go through the system. But there are also things that I’d never considered—most of which didn’t have to do with the X’s and O’s of how to answer a call or schedule an appointment, but more of how to make sure the patient is feeling the right way and has the right interactions with their care team.”

“So one trivial but profound example for me is that every time I called my cancer center, there would always be the same hold music—it never changed. I’ve been consulting with contact centers for 10 years, and I’ve never even once considered hold music. 但当你痛苦的时候, 你恶心, and you’re on your way to the hospital, and you hear that same music, it starts to trigger a sensory emotion. After the cancer was gone, 即使是六个月后, I’d call for my surveillance check and I’d hear that music. And it just triggered this nausea in me. It’s those little things that we don’t think of in big-picture consulting, but it makes or breaks someone’s day as a patient.”

Bringing his patient experience to his consulting practice.

“Something our team started focusing on in the last few years is including the patient experience. We make sure the health system is having patient focus groups, because the patient’s voice is just so important. When it comes to the actual feel, and the actual experience, we need to hear what our patients have to say. And I’m excited that more and more health systems are starting to do that.”

在播客上, Steve shares what he wishes he had told cancer center management about his experience—and how organizations can better solicit the patient perspective.

_{编辑: 马特杂粮面包}